Seattle woman offers hope and encouragement to the youngest heart warriors
SEATTLE, Feb. 9, 2026 — When Annie Thordarson-Lee was born, her parents learned she had multiple congenital heart defects (CHDs) including sub-aortic valve stenosis, Ebstein’s Anomaly and Wolff Parkinson White Syndrome, an electrical rhythm disorder. A surgical repair was recommended and Thordarson-Lee underwent her first procedure at 18-months old. This was followed at age five by a second procedure to install a pacemaker. At the time, 36 years ago, her medical team cautioned the family she shouldn’t push too much physically. Although Thordarson-Lee had dreams of playing basketball, she was guided into activities like drama and music. Today the picture for children born with CHD could look different.
According to the American Heart Association, congenital heart defects are the most common form of birth defect in the U.S.[1], affecting nearly 40,000 babies each year[2]. Thanks to advances in research and treatment from the American Heart Association, the Children’s Heart Foundation and others, more people born with CHD are living longer, healthier lives. Today, there are an estimated 2.4 million children and adults living with CHD in the United States[3]. Thordarson-Lee is one of them.
“I am living proof that a full and healthy life is possible,” said Thordarson-Lee. “My message to the parents sitting in a doctor's office learning their child has a congenital heart defect is one of hope. Although it can be a very scary journey, the future is bright.”
To learn more about congenital heart defects, visit heart.org/CHD. Find a community of support for those living with CHD or parents caring for a child with CHD at supportnetwork.heart.org.
Additional resources:
- Multimedia is available on the right side of this release
- 2026 Heart Disease & Stroke Statistics Update Fact Sheet Children & Cardiovascular Diseases In the United States
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About the American Heart Association
The American Heart Association is a relentless force for a world of longer, healthier lives. Dedicated to ensuring equitable health in all communities, the organization has been a leading source of health information for more than one hundred years. Supported by more than 35 million volunteers globally, we fund groundbreaking research, advocate for the public’s health, and provide critical resources to save and improve lives affected by cardiovascular disease and stroke. By driving breakthroughs and implementing proven solutions in science, policy, and care, we work tirelessly to advance health and transform lives every day. Connect with us on heart.org, Facebook, X or by calling 1-800-AHA-USA1. In Washington, visit heart.org/Washington, or follow us on Facebook, Instagram or X.
For Media Inquiries:
Lily Gordon: lily.gordon@heart.org
Valerie Koch: valerie.koch@heart.org
For Public Inquiries: 1-800-AHA-USA1 (242-8721)
heart.org and stroke.org
